"The scariest part was the unknown, not knowing how this would turn out, but the hospital was amazing," said Norah's mom Shannon. "They provided us with every resource available to help us understand Norah’s condition, what she would need and how they would help her."

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Community

                                       

 

FINDING  A HEART  OF GOLD

 

 

 

 

 

Chilliwack girl survives Congenital Heart Disease to start life again

 

 

 

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hile other babies are bouncing on an elated mom and dad's knee beginning life in wide-eyed wonderment, 3-month-old Norah, the latest addition to Chilliwack's Murphy family, was struggling to survive and instead of celebrating, Robbie and Shannon Murphy were worried sick about their baby.

Norah was born in April 30, 2014. A month later doctors found a murmur in her heart. Three months later she was diagnosed with Congenital Heart Disease (CHD). That and Congestive Heart Failure (CHF) are serious conditions that affect approximately 1 in 100 newborns in Canada.

An offshoot of those afflictions are babies born with Atrial Septal Defect (ASD), more commonly known as a hole in the heart, which may not be obvious when a child is born and it often isn't spotted in babies until later in childhood or even as adults.

Sometimes ASD can be spotted congenitally, however in Norah's case she was lucky and diagnosed within three months of being born. ASD is a relatively simple affliction and doctors aren't in uncharted waters when treating CHD, but, it is deadly if left untreated and doctors told the Murphy's that in order for Norah to survive it was critical she have surgery.

 

 

 

 

 

 

There was not a moment lose. Norah's heart began failing and was just a tiny tap in her sunken chest. She was quickly losing circulation and her legs were turning blue. Her blood pressure skyrocketed. But this little bundle of joy fought back tooth and nail.

"The scariest part was the unknown, not knowing how this would turn out, but the hospital was amazing," said Norah's mom Shannon. "They provided us with every resource available to help us understand Norah’s condition, what she would need and how they would help her."


At five months, she had her first of three successful surgeries with her last at 3-years-old. In all, doctors found and repaired a five hole in her little heart. Due to her health problems, Norah's been left with some developmental issues. But nothing has stopped her and she's hit the ground running ever since.

 

"We are beyond thankful for all the community support we’ve received, the love, prayers, and support of our church family, our immediate family and friends, and for all the extras our own elementary school has supported us with too. We live in an amazing community full of love," said Murphy, who is also lead Scentsy  consultant.

Every step of the way on the road to their little sister wellness, Nora's sisters Maddie, 9, and Layla, 7, wanted to help raise awareness and money for the hospital's Heart Centre so they embarked on fundraising missions including: multiple bottle drives; selling plants they grew and even donating a total of 23 inches of hair between them to help make wigs for kids stricken with cancer.

To make a change in the lives of sick kids and help them to a happy healthy life with a cash donation to the BC Children's Hospital here. Learn more about the
BCCH.


The deadline to purchase tickets has come and gone  but look for the winners at this year's grand prize draw Thursday, May 3, 2018 – 11 am to 1 pm at Global TV, 7850 Enterprise Street, Burnaby BC.

 

See a four-minute clip of last year's draw courtesy of Global TV here.

 

About The BC Children's Hospital
“The lottery revenue helps to provide life-saving care to the more than 86,000 kids who visit BC Children’s Hospital every year,” said Teri Nicholas, president and CEO of the BC Children’s Hospital Foundation. “The funding goes towards ground-breaking studies in the prevention, treatment and cure of childhood illnesses, and help all children reach their full potential.”  

 

 

 

 

About Choices Lottery
The Choices Lottery supports the BC Children’s Hospital Foundation and the money raised goes to funding research that leads to innovative discoveries and treatments. Ticket sales for the 2018 Choices Lottery run until April 12, 2018, and there are over 3000 prizes worth over a total of $3.6 million, including luxury homes, vacations, and cars. 295,000 tickets are sold to win a Grand Prize.

 

 

 

 

 

 

 

 

 

 

 


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